The Amber Phillpott Trust has been inspired by the tragic passing of Amber Rose Phillpott who died at just 18 months old from Acute Myeloid Leukaemia (AML). It is evident from the statistics that not enough is known about this rare form of leukaemia and therefore the Amber Phillpott Trust will focus exclusively on AML.
Your donation would support the Charity’s main objectives which are:
First, to provide financial assistance to any chosen initiative working:-
* to develop better treatments for AML
* to find a cure.
* in support of AML research.
Second, to raise awareness of AML and The Trust in order to:-
* develop funding sources
* identify future initiatives to fund.
The Trust will also consider providing financial support to projects working in the area of adult AML due to similarities with childhood AML.
The proportion of children with AML that now survive is less than 7 in 10.
Ronald McDonald House Charities is the leading provider of family accommodation for hospitals caring for children. At the heart of our work is the desire to support families while their children are in hospital. RMHC is able to provide support to parents and ensure they have somewhere to stay that is close to their child and available without cost.
A common misconception is that we are part of the NHS service and therefore funded as such and so we are very keen to promote our charitable status.
The Ronald McDonald House at Oxford Children’s Hospital welcomed its first families in January 2007. The House has 18 en-suite bedrooms, a communal bathroom, a laundry room, two fully equipped kitchens & communal lounges.
At RMH Oxford we provide accommodation and support to families while their children are in the Oxford Children’s Hospital. This ensures they have somewhere to stay close to their child without cost and enables them to concentrate more fully on their child’s care.
The house has 18 en-suite bedrooms and we are always full, and often have long waiting lists. Since our house opened on the 15th January 2007, we have been able to help over 1700 families from all over the county and countrywide.
The original development of the house was fully funded by RMHC (Ronald McDonald House Charities) however, together with the management board we are responsible for raising the £120,000 annual on-going running costs.
Helen & Douglas House
Helen House was the world’s first children’s hospice, opening in November 1982. It sprang from the friendship between Sister Frances Dominica and the parents of a seriously ill little girl called Helen who lived at home with her family but required 24 hour care.
It is natural that the parents of a much-loved but very ill child would want to care for them at home, but caring for your child every day and night, as well as looking after the rest of your family, and earning a living, can be exhausting.
Helen’s family’s experience highlighted the need for respite care and support for children with life-shortening conditions and so Helen House was set up to help families cope by providing occasional respite care modelled on that provided in the family home – personalised and tailored to individual needs.
The building was based on the family home with just eight children’s bedrooms, as the small scale provides flexibility, as well as affording the children and families who stay there sensitivity and dignity. The emphasis is on making the most of life, whatever the circumstances.
With improvements in medical care, children and young adults with life-shortening conditions are in some instances living longer than ever before.
A children’s hospice environment is unlikely to be suitable for someone who’s 16 or over, but neither is an adult hospice, which is why Douglas House, the world’s first hospice specifically for young adults, opened in February 2004.
Douglas House provides a young person with the time to do the things they like to do with the support of the nursing and care team.
The Oxford Childrens Hospital, which opened in 2007, is devoted to the care of sick children, but with the resources of a large teaching hospital on site.
Facilities from the atrium to the clinics and wards have been designed specifically for the welfare of children and teenagers.
The hospital includes a spacious outpatients department next to a new children’s radiology department and a paediatric assessment centre.
Children are treated here for a range of conditions including heart disease, chest disease, childhood cancer, neurological disorders and those requiring general or specialist surgery.
There is accommodation for parents to stay overnight, either next to their child’s bed or in a dedicated parent/carers accommodation suite.
The integration of children’s services offers many benefits for patients: for example, all children having major surgery are close to intensive care, and parents of disabled children, who previously have had to travel between three sites for regular appointments, now only have to visit one.
Read more here: http://www.ouh.nhs.uk/charity/what-we-do/chox/default.aspx